From the article: Waiting For a Diagnosis
Getting a correct rare disease diagnosis is difficult, and usually requires a lot of time, doctor visits, and medical tests. Yet after all that you still might not have a diagnosis for certain. Are you still waiting to know what you have? What have you been going through to get a diagnosis?
vicki
- It took 2 years for me to be diagnosed with stiff person syndrome. My nuerologists hadne seen a case of it before in New Zealand. During that time I was in so much pain with frequent falls and no idea why it was happening
- —Guest vicki136@hotmail.com
