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Legislation About Rare Diseases and Orphan Drugs

Information about proposed or enacted legislation pertaining to rare diseases or orphan drugs.

House Votes to Ban All Cloning Research
The U.S. House of Representatives passed legislation on February 27, 2003, to ban all cloning research using human embryos. The debate now moves to the Senate. Here is the information on the Cloning Prohibition Act and the controversy surrounding it, from the About.com Guide to Rare/Orphan Diseases.

Rare Diseases Legislation Passed
The Rare Diseases Act of 2002 and the Rare Diseases Orphan Product Development Act were signed into law in November 2002. Here is a brief summary of the Acts and why they are important.

Reconstructive Surgery Act in Congress
This bill would require insurance companies to cover the costs of reconstructive surgery to correct or repair abnormal body structures. It's sitting in committees in Congress, but you can help get it moving.

President Bush Signs Cancer Research Law
On May 14, 2002, U.S. President George Bush signed the Hematological Cancer Research Investment and Education Act of 2002 into law. It establishes and funds two centers for blood cancer research and education at the national level.

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