Rare Diseases In the News
From Mary Kugler, R.N., former About.com Guide
Rare disease stories and articles in the news, plus the background info about the disease.
Famous people and rare diseases
Famous people who either have a rare disease themselves or are a spokesperson for a rare disease national organization.
- Ryan Dempster's daughter has DiGeorge syndrome
- William "The Refrigerator" Perry has Guillain-Barre syndrome
- Harrison Ford, Brendan Fraser in Pompe disease movie
- Jett Travolta, Kawasaki disease survivor, dies in Bahamas
- Comedian Bernie Mac had sarcoidosis
- Paula Abdul reveals battle with reflex sympathetic dystrophy (RSD)
- Dara Torres' coach, Michael Lohberg, diagnosed with aplastic anemia
- World's tallest woman dies
Hot Topics
News about rare disease drug development, research, issues, and what people are talking about.
