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Rare Diseases Research Studies

Articles and information about rare diseases research studies, including online links.
What Is a Clinical Trial?
Information about what a clinical trial is, what the different types of clinical trials are, and what the phases of a clinical trial are.
What is informed consent?
Information about what informed consent is and how it relates to a clinical trial.
Rare Diseases Clinical Research Network
Information about the Rare Diseases Clinical Research Network of the U.S. National Institutes of Health (NIH).
NDRI (National Disease Research Interchange)
Information about the NDRI (National Disease Research Interchange), including the National Rare Disease Biospecimen Resource (NRDBR).
CancerNet
Choose "Clinical Trials" for information on trials and to locate them.
CenterWatch
Listings of clinical trials by disease categories.
The Cleveland Clinic
Maintains lists of trials needing volunteers. Many studies need patients, their families, and healthy individuals.
NIH: Clinical Trials
Site hosted by National Institutes of Health and National Library of Medicine offers consumer information about trials. Browse by condition or trial sponsor.
NIH: Research and Clinical Trial Database
Lists of Internet links to current clinical trials, from the National Institutes of Health (U.S.).
National Cancer Institute: Clinical Trials
Comprehensive online information about clinical trials, whether to participate, what's involved if you volunteer, and more, from the National Cancer Institute.
Explore Rare Diseases
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