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Rare Diseases Research Studies

Articles and information about rare diseases research studies, including online links.
Rare Diseases Clinical Research Network
The U.S. Rare Diseases Clinical Research Network has more than 20 studies of rare diseases ongoing.
Many Patients Unaware of Clinical Trials
Article examines reasons why clinical studies can't get enough volunteers. From the About.com Guide to Rare/Orphan Diseases.
Ten Questions to Ask About Clinical Trials
Ten questions someone considering participating in a clinical trial should ask. From the About.com Guide to HIV/AIDS.
CancerNet
Choose "Clinical Trials" for information on trials and to locate them.
CenterWatch
Listings of clinical trials by disease categories.
The Cleveland Clinic
Maintains lists of trials needing volunteers. Many studies need patients, their families, and healthy individuals.
NIH: Clinical Trials
Site hosted by National Institutes of Health and National Library of Medicine offers consumer information about trials. Browse by condition or trial sponsor.
NIH: Research and Clinical Trial Database
Lists of Internet links to current clinical trials, from the National Institutes of Health (U.S.).
National Cancer Institute: Clinical Trials
Comprehensive online information about clinical trials, whether to participate, what's involved if you volunteer, and more, from the National Cancer Institute.

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