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Books and Movies About Rare Disorders

Reviews of books and movies related to rare diseases and disorders.

The Real Rain Man
Review of the book, The Real Rain Man, about Kim Peek, the inspiration for Dustin Hoffman's character in the movie, Rain Man.

ALS: A Guide for Patients and Families
Review of "ALS: A Guide for Patients and Families," edited by Hiroshi Mitsumoto, MD and Theodore L. Munsat, MD.

Amyotrophic Lateral Sclerosis
Review of the book "Amyotrophic Lateral Sclerosis" by Miller, Gelinas, and O'Connor, published by Demos Medical Publishing.

Dark Remedy: The Impact of Thalidomide
This book tells the story of thalidomide's development, marketing, and the tragedy that followed, as well as present therapeutic uses for the drug.

Life on Cripple Creek
This book by Dean Kramer provides thoughtful, and often humorous, glimpses into the everyday world of someone with multiple sclerosis.

Living Well With Graves' Disease and Hyperthyroidism
Review of the book, Living Well With Graves's Disease and Hyperthyroidism, by Mary Shomon, published 2005 by HarperCollins Publishers.

Books About Munchausen Syndrome by Proxy
Munchausen syndrome by proxy is a psychological disorder in which a parent fakes illness in her child in order to gain attention. The books listed here present the controversy surrounding Munchausen: Is it is more common than thought? or is it misapplied when physicians misunderstand the symptoms they see? or is the diagnosis a way of oppressing women through false accusations? You decide.

Positive Options for Antiphospholipid Syndrome (APS)
Review of the book, "Positive Options for Antiphospholipid Syndrome" by Triona Holden, published by Hunter House Publishers, 2003, a self-help book.

Positive Options for Reflex Sympathetic Dystrophy (RSD)
Review of the book, "Positive Options for Reflex Sympathetic Dystrophy" by Elena Juris, published by Hunter House Publishers, 2005, a self-help book.

Pox Americana
Did you know that smallpox played a major part in the American Revolutionary War? That many African-Americans and Native Americans died? In this book, Elizabeth A. Fenn reveals the impact of the great North American smallpox epidemic of 1775-1782. From the About.com Guide to Rare/Orphan Diseases.

Top 5 Movies About Rare Diseases
These are not TV-movie-of-the-week stories, but feature films. They focus on rare diseases and disorders which are integral to the story, not just an afterthought or a plot device. If you missed them at the box office, all are worth seeing.

Top Biographies/Memoirs About Rare Disorders
It is one thing to talk about what the symptoms of a rare disorder are or the lifestyle changes it produces. It is another thing entirely to live it, or have a loved one affected. These books show us the intimate details of life with a rare disorder.

Top Three Children's Books About Down Syndrome
In the old days, children’s books tried to show that children who were “different” were “special.” The most attractive thing about these books about Down syndrome is that they’re not about Down’s at all—in fact, it’s not even mentioned. From the About.com Guide to Rare/Orphan Diseases.

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