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Contact the Guide to Rare Diseases

Comments and suggestions about the Rare Diseases site are always welcome. Due to the volume of email I receive, I may not be able to respond right away or do in-depth research. You can email me at rarediseases.guide@about.com.

F.A.Q.

Q. I have these symptoms: __________________. Can you tell me what disease I have?
A. Please be aware that not only am I not a physician, I can't diagnose a problem or give medical advice over the Internet. I might be able to suggest a specialist or type of doctor who could help you, or point you toward some information that could be useful.
Q. I'm looking for information about a particular disease.
A. Diseases on the site are listed by alphabetical order. If you aren't sure about the name of the disease, try looking in the Information By Disease Type page. If you still can't find it, email me and I will try to find you some information about it.
Q. Is _____________ a rare disease?
A. The page Rare Diseases: Basic Information has the information you're looking for.
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