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Parry Romberg Syndrome
Guide picks
A disorder characterized by slowly progressive wasting of the soft tissues of the face, seizures, and severe face pain.

Parry Romberg Syndrome
Article describes the disorder, its symptoms, diagnosis, treatment, and research. From the About.com Guide to Rare/Orphan Diseases.

The Rombergs Connection
Site provides information, FAQs, support, chat/message board, news, and photo album.

Kelly's Story: Beyond the Mirror
Rocky Mountain News article about a young girl with Parry Romberg syndrome--informative and insightful.

NINDS: Parry Romberg Syndrome
Fact sheet on the disorder from the National Institute for Neurological Disorders and Stroke (U.S.).

NORD: Parry Romberg Syndrome
Definition of the disorder, from the National Organization for Rare Disorders (U.S.).

Parry-Romberg Syndrome: A Clinical Survey
Information and survey being conducted by Dr. Jon Stone of Edinburgh, Scotland.

Facial Neuralgia Resources
Site offers information on conditions, treatments, support, coping skills, news, bookstore, and clinical trials.

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