Menkes Disease
Article describes Menkes kinky hair disease, its symptoms, diagnosis, and treatment. From the About.com Guide to Rare/Orphan Diseases.

NORD: Menkes Disease
Definition of the disorder from the National Organization for Rare Disorders (U.S.).

Justin O'Niel Gordon and Menkes Syndrome
Site relates the story of a family affected by Menkes disease. Includes photos and message board.

Leo's Site
Story of a family in Luxembourg affected by Menkes disease.