Crouzon Syndrome
Feature article describes Crouzon syndrome, its symptoms, diagnosis, and treatment. From the About.com Guide to Rare/Orphan Diseases.

Crouzon Support Network
Site offers information, resources, chat, forum, events listing, and photos and stories.

Cleft Palate Foundation: Crouzon Syndrome
Site offers complete information about Crouzon syndrome.

Crouzon's Bridge of Hope Foundation
Crouzon's Bridge of Hope Foundation provides financial assistance to those suffering with Crouzon Syndrome who do not have the financial means of paying for surgeries and other treatments. Site offers information, resources, pictures and stories.

NORD: Crouzon Syndrome
Brief definition of the syndrome from the National Organization for Rare Disorders (U.S.).

Plastic & Craniofacial Surgery for Infants & Children
Site offers information about the deformities in Crouzon syndrome and how they can be corrected surgically.

AboutFace USA
A non-profit organization dedicated to providing information, emotional support, and educational programs to individuals who have a facial disfigurement, and to their families.

Chidren's Craniofacial Association
CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.