Canavan Foundation Online
Provides comprehensive information on all aspects of the disorder.

Canavan Research Foundation
Information on the disorder, chat, photo gallery, and news.

Lysosomal Diseases Australia Newsletter
News and information on storage diseases. Requires Adobe Acrobat Reader for PDF files.

National Institute of Neurological Disorders and Stroke
Offers a comprehensive description of the disease and answers FAQs.

National Tay-Sachs and Allied Diseases Association
Gives a disease profile, offers resources, services, and a reading list.

The New Zealand Lysosomal Storage Diseases Support Group
Provides information, newsletter, latest research, and links.

Canavan Research Illinois
Organization started by parents of a child with Canavan disease connects affected families, offers info, and funds research.

Back to index of storage diseases