Adrenoleukodystrophy (ALD) and Lorenzo's Oil Article explains the disease, its symptoms, diagnosis, and treatments, and what new therapies are being explored. From the About.com Guide to Rare/Orphan Diseases. Association Europeenne contre les Leucodystrophies Addresses of support groups in France, Switzerland, Belgium, and comprehensive information on the disorder in French.
The British Trust for the Myelin Project Facts, research news, support, and links to international support groups. GeneClinics: Adrenoleukodystrophy Comprehensive information on all aspects of adrenoleukodystrophy, including detailed genetic information. Written at a scientific level. NCBI: Adrenoleukodystrophy Brief information on the disorder from a genetic perspective, from the National Center for Biotechnology Information (U.S.). The Myelin Project Information about the organization's purpose and activities in supporting myelin research. Myelin Projekt Deutschland e.V. Information in German. NINDS: Adrenoleukodystrophy Information on the disorder from the National Institute for Neurological Disorders and Stroke (U.S.). The Peroxisome Website Medical and genetic information on adrenoleukodystrophy written in plain language for the layperson to understand, from the Johns Hopkins University School of Medicine. The Stop ALD Foundation Information on the disease and its current therapies. United Leukodystrophy Foundation Brief introductions to the leukodystrophies. Also has printed matter and videos available for order.
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