Paula Abdul reveals battle with RSD
Tuesday July 28, 2009
This blog post has 33 responses so far from people who have personal experience with RSD, some as young as 8 years old. Take some time to read their stories ... Read More
RSD (Reflex Sympathetic Dystrophy)
Sunday July 26, 2009
RSD usually develops as a result of injury. It consists of unexplained intense pain in the injured part of the body, as well as swelling and altered sensation. It can ... Read More
Emma Thompson grants wish of teen with CF
Tuesday July 21, 2009
Isabelle Brown, age 13, got her wish granted by a children's charity--to meet actress Emma Thompson. On July 15, Isabelle spent a day with Ms. Thompson on the set where ... Read More
Lymphangiomatosis
Sunday July 19, 2009
Lymphangiomatosis is a disease in which many tumors (lymphangiomas) or cysts grow in the lymph system of the body. The tumors are not cancerous but do cause pain and other ... Read More
Cornelia de Lange Syndrome World Conference July 23-26, 2009
Thursday July 16, 2009
The Fifth Bi-Annual Conference for the CdLS World Federation will take place in Brighton, England, on July 22-26, 2009. Cornelia de Lange syndrome (CdLS) is a genetic disorder that causes ... Read More
Texas finally adds CF testing to newborn screening
Tuesday July 14, 2009
Every state in the U.S. tests newborns for cystic fibrosis (CF), an inherited exocrine disorder, except Texas. In December 2009 that will change, as Texas is finally adding CF testing ... Read More
Xeroderma Pigmentosum
Sunday July 12, 2009
Most people take care not to be exposed too long to the sun. People with xeroderma pigmentosum (XP) can't be exposed to sunlight at all because, due to a genetic ... Read More
Summer schooler arrives with his own AED
Thursday July 9, 2009
During the summer I work as a nurse in one of the city's summer school programs for children with special needs, so I am used to children arriving at school ... Read More
Tracleer (bosentan) receives EU approval for treating PAH in children
Wednesday July 8, 2009
On July 6, 2009, Actelion Ltd announced that the pediatric dispersible formulation of Tracleer (bosentan) for the treatment of pulmonary arterial hypertension (PAH) in children has been approved in the ... Read More
Gastroschisis
Sunday July 5, 2009
About 1 in 5,000 infants in the United States is born with gastroschisis, a birth defect in which an infant is born with some or all of his/her intestines on ... Read More
23 people hospitalized from E. coli outbreak in beef
Wednesday July 1, 2009
The Centers for Disease Control and Prevention (CDC) is reporting that 23 people in 9 states have been hospitalized due to eating bad ground beef. The beef, from the JBS ... Read More