October 31, 2008, is Interstitial Cystitis Awareness Day. Interstitial cystitis, also called "painful bladder syndrome," is a disorder with symptoms of pain, pressure or discomfort related to the bladder and/or ... Read More

The U.S. National Institutes of Health (NIH) has launched a Web site called "Children and Clinical Studies" to offer parents and health care providers a guide to medical research involving ... Read More

Paroxysmal nocturnal hemoglobinuria (PNH) is an acquired blood stem cell disorder. It was originally named for its symptom of dark-colored urine (hemoglobinuria) produced in the morning. PNH affects both males ... Read More

On October 10, 2008, the U.S. Food and Drug Administration (FDA) approved for marketing the first product in the United States intended to protect people with hereditary angioedema (HAE), a ... Read More

Hay-Wells syndrome is a form of ectodermal dysplasia, a group of over 100 inherited disorders that cause hair, teeth, nails, and glands to develop abnormally. Cleft palate, sometimes with cleft ... Read More

The National Organization for Rare Disorders (NORD) reports that the Social Security Administration (SSA) is seeking input from both physicians and patients on rare diseases. The SSA conducted hearings last ... Read More

Primary intestinal lymphangiectasia (PIL), also called Waldmann's disease, is a disorder that causes protein to be lost from the intestines. Diagnosis of PIL is often made in childhood, usually before ... Read More

October 4, 2008, is Sarcoidosis Awareness Day. Comedian Bernie Mac's recent death brought some national attention to sarcoidosis, a disease that can occur anywhere in the body but mainly affects ... Read More