The 18th International Symposium on ALS/MND (amyotrophic lateral sclerosis and motor neuron diseases) will be held December 1-3, 2007, in Toronto, Canada. The International Symposium on ALS/MND is a unique ... Read More

Former CNN host Carol Lin started a blog for rare cancers after her husband was diagnosed with squamous cell carcinoma of the maxillary sinus. Lin's October 22 blog entry gives ... Read More

After Alzheimer's disease, Parkinson's disease is the most common neurodegenerative disease. Although it is not rare, understanding Parkinson's disease—what it is, what causes it, and how to treat it—will give ... Read More

The 4th European Conference on Rare Diseases (ECRD 2007) will be held November 27-28 in Lisbon, Portugal. According to the Program Committee, Lisbon 2007 is the second conference to be ... Read More

Does having a head injury increase the risk of developing amyotrophic lateral sclerosis (ALS, or Lou Gehrig's disease), a motor neuron disease? Researchers at the National Institute of Environmental Health ... Read More

In the 1970s, the world learned the story of David Vetter, a boy born with severe combined immunodeficiency (SCID). David lived all of his 12 years of life inside a ... Read More

MB07133 On September 10, 2007, the U.S. Food and Drug Administration (FDA) granted orphan drug designation to MB01733 (Metabasis Therapeutics, Inc.) for the treatment of hepatocellular carcinoma, the most common form ... Read More

Huntington's disease, also known as Huntington's chorea, is a hereditary, degenerative disorder of the central nervous system. Researchers at Harvard Medical School and their colleagues assessed the treatment potential of ... Read More

Hirschsprung’s disease is a birth defect in which part of the large intestine lacks nerve cells. Without nerve cells, the muscles in that part of the intestine can’t work properly. ... Read More

U.S. Senator Pete Domenici, the longest-serving Senator in New Mexico history, announced on October 4, 2007, that he will not seek reelection after serving six terms. The Senator, on his ... Read More

The 3rd International Meeting on Congenital Disorders of Glycosylation and related disorders will be held on October 18-19, 2007, in Paris. The program of this meeting covers all aspects ... Read More

October is National Spina Bifida Awareness Month in the U.S. Spina bifida occurs when the fetus is growing in the womb and its spine doesn't form correctly. Some of the ... Read More

The European Platform for Patients' Organisations, Science and Industry (EPPOSI) will hold its 8th Workshop on Partnering for Rare Disease Therapy Development at the Danish Parliament in Copenhagen on October ... Read More

There has been discussion and research in the medical community about how long smallpox vaccination lasts. For example, I was immunized in the 1960s. Would I still be immune to ... Read More