Why Is Getting A Rare Disease Diagnosis So Difficult?

Getting a rare disease diagnosis can be a long, frustrating process. Most doctors aren't familiar with rare diseases so they don't recognize them. Or you may not fit the usual picture of the disease. Or you may be waiting forever to see a specialist to get a diagnosis. I've heard many stories of misdiagnosis too, or simply no diagnosis at all. Did you have trouble getting a diagnosis? Leave a comment below to share your story.

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