1. Health

Two studies of Angelman syndrome looking for volunteers

From Mary Kugler, R.N., About.com GuideFebruary 7, 2007

Research volunteers neededThe Rare Diseases Clinical Research Network lists these two studies as currently looking for individuals with Angelman syndrome to participate:
  • Angelman Syndrome Natural History Study
    This study is designed to learn more about the natural history, morbidity and mortality of Angelman syndrome. Data will be collected to gain a better understanding of the disease progression, and follow the natural history of the symptoms including assessment of quality of life and longevity.
  • Efficacy of Metafolin in Angelman Syndrome
    This study has been designed to evaluate the possible treatment benefits of L-5-methyltetrahydrofolate (Metafolin), vitamin B12, creatine and betaine in children with Angelman Syndrome. Eligibility is 5 years of age and under with a confirmed diagnosis.
Comments
Comments are closed for this post.
Leave a Comment

Line and paragraph breaks are automatic. Some HTML allowed: <a href="" title="">, <b>, <i>, <strike>
Related Searches volunteers

©2012 About.com. All rights reserved.

A part of The New York Times Company.

We comply with the HONcode standard
for trustworthy health
information: verify here.