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Rare Diseases Blog

By Mary Kugler, R.N., About.com Guide to Rare Diseases since 2000

Prader-Willi Syndrome Awareness Week April 24 - May 1

Thursday April 29, 2004
There are an estimated 15,000 children in the United States and 500,000 worldwide living with Prader-Willi syndrome, a complex endocrine syndrome. Initially, the infant with Prader-Willi has growth problems and difficulty feeding. However, after age 2 the child develops insatiable hunger. Prader-Willi syndrome is the most common known genetic cause of life-threatening obesity in children.

The Prader-Willi Syndrome Association (USA) has made significant progress in improving awareness about the syndrome, which has helped increase early diagnosis from 20 percent to 50 percent in the last two years alone

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